ZOOTOPIA-2016.-full-movie-Hindi-640x360.png' alt='Joe Maddison`S War Movie Watch Online' title='Joe Maddison`S War Movie Watch Online' />Maddison Sherwood, from Loughborough, was born with Spinal Muscular Atrophy distress type 1 and doctors warned she would not make it to her second birthday. Madelaine Newton, Actress When the Boat Comes In. Madelaine Newton is an actress, known for When the Boat Comes In 1976, Joe Maddisons War 2010 and Auf. Couple say they cant afford bills to keep daughter alive. Brave Maddison has defied all medical expectations and is due to celebrate her ninth birthday today. A mum and dad fear their little girl could die because they cannot afford the electricity bill to keep her breathing. Maddison Sherwood, from Loughborough, was born with Spinal Muscular Atrophy distress type 1 and doctors warned she would not make it to her second birthday. However, brave Maddison has defied all medical expectations and is due to celebrate her ninth birthday today. Her condition means Maddison cannot breathe unaided and she has been using a ventilator since she was nine months old. But her family have been plunged into debt with energy provider E. ON after their monthly bill rocketed. Her parents, who provide her round the clock care, are struggling to make ends meet and keep her life saving equipment running. Lidia and Jamie Sherwood, 3. Mum Lidia, 3. 1, said Its incredibly stressful worrying about the energy bills, especially when looking after Maddison as well. Maddisons parents, who provide her round the clock care, are struggling to make ends meet and keep her life saving equipment running. She is pictured with her mother Lidia Sherwood. Her condition means Maddison cannot breathe unaided and she has been using a ventilator since she was nine months old. Maddison was diagnosed with Spinal Muscular Atrophy distress type 1 when she was just six months oldIt really is a matter of life and death for us. We previously paid a set amount of 1. We have had to apply to charities in the past for help with bills as her dad and I had to give up work to become her full time carers. The equipment is so expensive, especially with us both being out of work. Her dad had been working since he was 1. We dont have money for anything else. We were given a key meter which they are not supposed to do with vulnerable children in case we cant put electric on the key. What we really want is a special tarriff for families with people on ventilators. Its not just us who are struggling. Mum Lidia, 3. 1, said Its incredibly stressful worrying about the energy bills, especially when looking after Maddison as wellMaddisons condition means she has low muscle tone, has poor swallowing abilities and cant breathe unaided. She was suffering with a cold which her body was not fighting and was rushed to intensive care at Queens Medical Centre in NottinghamWith medical advances more and more people are able to live at home with ventilators. Its fantastic, but the energy companies need to move with the times and realise this is happening. Its not enough to be put through to a help line where they try and give you tips on using less energy. Not having devices switched on is not an option for us. Maddison was diagnosed with Spinal Muscular Atrophy distress type 1 when she was just six months old. She was suffering with a cold which her body was not fighting and was rushed to intensive care at Queens Medical Centre in Nottingham. She uses a tracheotomy tube to breathe, relies on a wheelchair, and has round the clock care from her parents. Issuu is a digital publishing platform that makes it simple to publish magazines, catalogs, newspapers, books, and more online. Easily share your publications and get. Tyneside shipbuilder Joe Maddison lost his faith in the trenches at the Somme in 1916. Now that World War Two has begun he is too old to enlist alongside his son and. Joe Maddison`S War Movie Watch Online' title='Joe Maddison`S War Movie Watch Online' />Poor Maddisons parents say rocketing electricity prices mean they could be unable to afford future energy bills. She was in the hospital for 1. Maddison, the youngest of four siblings Lacey, 1. Harley, 1. 2, Jaden, 1. January 2. 01. 0. Jamie quit his job as a builder to help Lidia care for her. The family have since survived on 2. Lidia said When she was born she was so happy and interactive. The diagnosis came as a real shock. I guess you could describe it as bittersweet, because we knew something was wrong but we really were not expecting it. Its an extremely rare condition and there were only 6. Maddison was born. The nine year olds family have already resorted to asking charities for help to pay for Maddisons care Its an extremely rare condition and there were only 6. Maddison was born, said caring mother Lidia Eventually we were given a choice turn off the ventilator or let her have a tracheostomy and train for seven months to look after her at home. We took the best option to keep her alive and promised her the best care at home. Predators Full Movie Online Free there. But we were still devastated and went through a grieving process. We were told she would be paralysed and would not be able to eat, swallow or talk, and they expected her to pass away before her second birthday. Maddisons condition means she has low muscle tone, has poor swallowing abilities and cant breathe unaided. She uses a tracheostomy tube to breathe, relies on a wheelchair, and has round the clock care from her parents. Her parents have to constantly monitor her vital signs, do stretches and strengthening exercises with her every day and use a cough machine three times a day to help clear her airways. All smiles Maddison tries not to let her condition get her down. She attends a mainstream primary school, is part of a theatre group and plays wheelchair football. Her ventilator, bed and bath are powered by electricity. Watch Poolboy: Drowning Out The Fury Online Facebook. She also has to be careful around people with coughs or colds, which can be extremely dangerous as the muscles she uses to cough are paralysed. However, Maddison tries not to let her condition get her down. She attends a mainstream primary school, is part of a theatre group and plays wheelchair football. Maddison also enjoys singing and even caught the attention of pop group Little Mix who shared the youngsters karaoke video. It racked up more than 7. Facebook. Lidia said She really is remarkable and such an inspiration. She is good at just getting on with life and enjoying what she is doing. Shes extremely confident. Every once in a while she will get down about it, and as she gets older I think she realises more and more that it is tough, but she always bounces right back. Energy firm E. ON has been contacted for comment. Watch Perfect Opposites Online Full Movie there.